fibromyalgia

[pixi]

I've had fibromyalgia since I was a kid, over 30 years now.  90% of the time I can cope with it even when its really bad, I manage to do a part time job and look after the house etc, but there are times when I really feel I can't cope at all (eg I get frustrated to the point of tears when I can't do something simple one day like pick up a cup of tea that I managed to do the day before)  Is there anyone else on AB who has it and if so how do you cope with the bad days?

[Robinia]

Hi all & welcome to doreen.  I've really been struggling again this week  - had a dicky tummy.  The trouble is with conditions like these you never know whether it's 'just you' or, in the case of upset tums, whether it's a bug!

I have to confess my thread about childhood had a hidden reason for asking.  (I was hoping you'd all answer but everyone has an interesting story to tell!) I've read on one site that there may be a connection with FM & a traumatic/unhappy childhood. Now I know there's a lot of 'psycho-babble' about & childhood gets blamed for everything but I was just curious.  I don't know anyone with fm personally & have never been on any fm forums - when there are too many people at one time I get confused!!

Good job we can come & have a moan on here & then go & have a laugh in Chat!

[Firiffic]

Hey Pixi, does that mean that you think you may have Chronic Fatigue as well as Fibro?  I definitely have chronic fatigue as a major symptom of Fibro.  It is probably the main symptom.  I was diagnosed by a Rheumatologist who certainly believed in it and my GP does too.  Mind he keeps extremely current and has known me since at least my teens. 

I do indeed check here regularly.  I think we should have a name like "Fibroville"  or something cuter than that.  It was just off the top of my head and I will think further on't.

[Mistopheles]

Hi guys,
Just thought I'd drop in. Friffic - I'm in England (UK). I thought you might be American because of the pumpkin soup reference - not big in Britain, but very popular in America. My mum's just come back from New Zealand - keeps raving about how wonderful it is!

Hope you are all doing okay today.

[Firiffic]

Hello everyone! 

Mistopheles, I thought they were into pumpkin pies and eating it sweet!  Here pumpkin soup is very popular and also having it roasted is common and it's almost always in a hangi.  Some people put it in stews and casseroles.  I'm so pleased to hear that your mother enjoyed her trip here.  Was she here for the Lion's tour?  I'm rather biased but I'm pretty darned pleased my parents chose here to emmigrate to.  I'm English by birth and I'm still not an official kiwi.

Robinia,  I"m sorry to hear about your tummy.  It's so unpleasant.  I can usually trace it back to what I've eaten as I have developed food allergies with the Fibro. 

I can't say that I can make a connection to a traumatic or unhappy childhood.  I did suffer depression from time to time but generally I had a really happy childhood.  Both my grandmothers have Polymyalgia so it seems there is a pre-disposition. Also I was 18 mths old when we came to NZ.  I received the obligatory vaccinations but for some reason the doctor decided it hadn't taken so a few days before we got on the plane  they gave me another and I was sick all the way here.  I also developed very bad asthma shortly after arriving. My mother and I feel this has been why my immune system has always been very bad.

[pixi]

Hi all, hope everyones feeling okay, haven't been on her(this post) for a few days, so I thought I'd pop in with a quick hello before I go to work.  I have a week and 2 days off at beginning of August, I cant wait, I have decided to take everyones previous advice and relax as much I can.   I haven't been that good lately and I'm trying my best to keep my mind off it all.  Anyway everyone take care and once again, I hope we all have more good days than bad

[Firiffic]

Yayyy for Pixi!  I am so glad you are taking advantage of my birthday which, of course, as everyone knows, should be an international holiday!!!  Relax, chill out and have some laughs.  Laughing is an undocumented reliever of many of Fibromyalgia's symptoms.  I have researched this using the broad field of me and I have proved my theory often!  :-)

Take care all of you!

[Firiffic]

My parents are moving away!  My darling Mum who is also my best friend is leaving me!  They are going to London from New Zealand in 4 weeks.  My Dad has a job.  They are only planning to be away a year to two years but it's a long way away.  It does mean that they will be able to see their elderly mothers and other relatives a bit more often.  But I am really going to miss her!

[Robinia]

Hi all!  Firiffic (there, I've made you green again hehe!)I'm sorry that your family are moving a long way away for a while, hope you have friends nearby.  My parents are both gone now & I have 2 grown up sons (one with a daughter & step-daughter so I'm a gran!) but they have busy lives & I don't see as much of them as I'd like.  I don't offload my probs onto them & I hope that they never have anything like this.  It does seem to affect more women than men.  I think you're right about the weak immune system being a factor - I had Hodgkins disease 20 yrs ago & I honestly think this is a legacy of that but no one will say it is.

pixi  (you can be green too!)  you must be looking forward to your break - expect you'll spend it cavorting about at the bottom of people's gardens & getting up to no good!!  It's about time you magicked up a potion to make us all feel better - I have to say I'm still struggling with the worst flare-up I've had for about 3 yrs.  (Been two months now & it's sooo depressing! Then I feel guilty for feeling sorry for myself aaaggghhh!)

Oh gawd I've probably depressed everyone on here now - sorry!!  Hope you're all feeling in the pink!!

 

[Firiffic]

Thanks Robinia for your kind and supportive words!  This morning my Dad decided for various reasons he couldn't go and so now they are staying.  It's all been a huge roller coaster ride and we all feel knackered.

[jimmy654]

http://www.myfibro.com/fibromyalgia-treatment

[jimmy654]

The fatigue is what effects me the most and they can't seem to do much for it. If you want I have some rescources you could read like
http://www.myfibro.com/fibromyalgia-fatigue