Body & Soul1 min ago
New Book Out - On Alzheimer's & Dementia At Large
32 Answers
As a long time ABer, I approached the Ed about posting this thread and given that Alzheimer's and other dementia diseases are so prevalent in society today and not just the West, it's likely that many ABers are impacted as suffering from it, as a carer or a relative or close friend of a sufferer.
My book on the subject went live on Kindle last night - it will be joined by iBookstore, B&N(Nook), Kobo, and Lulu and the website probably today. It's titled 'My Mother Has Alzheimer's - Am I Going Mad?' and seeks to look at the case of my mother from a carer's perspective.
At its base, it's informative as to what dementia and its diseases entail and the way they express themselves and then the book is full of tips for carers and their families. It's more than that though as it is a narrative of what my mother has been through (and me) up to the point of professional care in a Home now needed, so it goes from early symptoms to diagnosis and through the major areas of how it manifested itself in her case. It's poignant, some pathos, emotion (close but not too close, apparently) and there's humour - needed as a pressure relief mechanism.....
Sales have begun already - the market is huge - in the UK alone there are 880k sufferers of Alzheimer's, 500k at home and family carers are thought to make up 90% - there's also, frighteningly so, 225k new cases a year, loading into the system and needing advice. I'm not shooting the moon but even a small slice of the market would be rewarding.
Then when you take the States at 5.7 million sufferers and that Alzheimer's is now prevalent in Japan, Taiwan and India at similar percentages of the population, it really is a global disease and support is needed. There's not that much out there that's been written by carers and if I can help them at all, then that will be a really good justification for writing the book.
Lastly, I sent pixie and a couple of others copies as they have been involved in dementia care professionally or as family so as to test its viability. Pixie loves it but I'll let her comment on it. I've also been put forward for a literary award already - from one of the proof-readers who has been bowled over by it.
I would love to hear any comments here or I can send a throw-away e-address in time - the Ed knows where I live too!
The first link is Amazon.co.uk User Recommendation
Yes, I know my name is out there in public, so no comments there please, if it helps folk then my job is done.
Thanks - DTC (N)
My book on the subject went live on Kindle last night - it will be joined by iBookstore, B&N(Nook), Kobo, and Lulu and the website probably today. It's titled 'My Mother Has Alzheimer's - Am I Going Mad?' and seeks to look at the case of my mother from a carer's perspective.
At its base, it's informative as to what dementia and its diseases entail and the way they express themselves and then the book is full of tips for carers and their families. It's more than that though as it is a narrative of what my mother has been through (and me) up to the point of professional care in a Home now needed, so it goes from early symptoms to diagnosis and through the major areas of how it manifested itself in her case. It's poignant, some pathos, emotion (close but not too close, apparently) and there's humour - needed as a pressure relief mechanism.....
Sales have begun already - the market is huge - in the UK alone there are 880k sufferers of Alzheimer's, 500k at home and family carers are thought to make up 90% - there's also, frighteningly so, 225k new cases a year, loading into the system and needing advice. I'm not shooting the moon but even a small slice of the market would be rewarding.
Then when you take the States at 5.7 million sufferers and that Alzheimer's is now prevalent in Japan, Taiwan and India at similar percentages of the population, it really is a global disease and support is needed. There's not that much out there that's been written by carers and if I can help them at all, then that will be a really good justification for writing the book.
Lastly, I sent pixie and a couple of others copies as they have been involved in dementia care professionally or as family so as to test its viability. Pixie loves it but I'll let her comment on it. I've also been put forward for a literary award already - from one of the proof-readers who has been bowled over by it.
I would love to hear any comments here or I can send a throw-away e-address in time - the Ed knows where I live too!
The first link is Amazon.co.uk User Recommendation
Yes, I know my name is out there in public, so no comments there please, if it helps folk then my job is done.
Thanks - DTC (N)
Answers
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Hi, it is fantastic- and well worth reading. No matter what type of dementia (Danny x) or even if you don't yet know anybody with it.
I personally found it quite addictive to read. It was very friendly and personal, but also with a lot of accurate and up-to-date information. It has a lot of humour in, but in a sensitive way. I think many many people will relate to it, and even those without direct experience just yet, would probably also enjoy it and find it helpful.
Of course, everyone is different, so the personal anecdotes especially, I think will reassure a lot of people... and especially people recently diagnosed. We used to often not tell the person themselves about their diagnosis, just the relatives, but now (and it does seem to make a big difference ime) that we now do, and it does seem to help people that they have some awareness of what is happening.
Not entirely sure why this hasn't been published many years ago... lol... but my only concern is not being articulate enough to give it the justification it deserves.
Congratulations, dt xx (I told you these Eds would get it ;-)) xx
I personally found it quite addictive to read. It was very friendly and personal, but also with a lot of accurate and up-to-date information. It has a lot of humour in, but in a sensitive way. I think many many people will relate to it, and even those without direct experience just yet, would probably also enjoy it and find it helpful.
Of course, everyone is different, so the personal anecdotes especially, I think will reassure a lot of people... and especially people recently diagnosed. We used to often not tell the person themselves about their diagnosis, just the relatives, but now (and it does seem to make a big difference ime) that we now do, and it does seem to help people that they have some awareness of what is happening.
Not entirely sure why this hasn't been published many years ago... lol... but my only concern is not being articulate enough to give it the justification it deserves.
Congratulations, dt xx (I told you these Eds would get it ;-)) xx
thank you, - it will be out in paper through Amazon shortly but then hardback around the mid-year if the sales go well - a good start given we haven't got everything up yet. The website is now there - https:/
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