Motoring1 min ago
My Beautiful Boy - Possible Neuromuscular Disorder
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I'm falling apart here. my son has always struggled with getting up from the floor, climbing etc - but just thought it was down to him being so tall for his age (4 1/2 years old). Physically and mentally he's fine other than a bit of struggling with some movements. we went for a podiatry appointment 6 months ago and were told that his calf muscles were under-developed (probably to do with his height) and to work on building them up. we started him in weekly swimming lessons etc. the follow up appointment was yesterday and we were sent straight from there to have blood tests for neuromuscular disorders and a genetics test. I'm broken. I've researched other issues which I had always thought were unrelated (loud snoring and sleep apnea) and it appears that these are also common in children with such problems. I'm sitting here waiting for the hospital to phone with the blood test results. what do I do?
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