yes of course she would ....
this condition is not that rare to be honest - the prevalence I had, was 1:100 000 and also occurs in children - 2-8 in a million a year is up to 240 cases a year - about one a day for one surgeon ...
Here is one of my colleagues writing about it in children:
http://www.ncbi.nlm.nih.gov/pubmed/11012949
The secret is in pre-op preparation -
yes there are specialists in this. I think it is OK to ask if he has done it before - the answer should be yes.
The main issue is that 5-10% are malignant and the CT for that - I think they still use MIGB - is specialised