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How To Get This Sorted
15 Answers
finally resorting to a complaint to the senior doctor, however this is not what i want - neck bone pain right down to lower back, spinal pain that has now gone out of control, constant pain in both hips, knees, and buttocks which is the worse of the pain, like sticking needles, glass in the whole of that area, so sitting is an ****** nightmare, standing, walking isn't any better, taking pain meds paracetamols, naproxen but it's not doing much. after six months like this, its become so dire that i have lost the plot. I have had other things come into play all this while, not least the weight loss, which has been significant. I am still waiting for the scan that was promised, i am having to do the chasing all the time, rant i suppose, sorry, just can't cope anymore.
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i have told them, i feel completely wretched. One doctor doesn't think it's anything so serious to send me to hospital, however no pain relief has worked. They don't examine you anymore just refer you onto someone, which takes time, so you can be in this nightmare for an age, as been proven. I can't see the end of this at all, that thought alone makes me want to scream.
Have you had a diagnosis of what is wrong?
Could it be this
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Could it be this
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no i haven't, and for no reason can explain the nerve tests have had done have not included so far the spine, back, and still waiting a month on for results of x rays from neuro team, as said i am the one doing the chasing the whole time. The pains in the buttocks, back is horrendous, no other word i could use for that.
I hope the complaint to the senior doctor will lead to something. I dont know what I would do in your situation. Maybe change my doctor if they were not taking it seriously? You need to know what it is that is causing this so you can be treated. I just googled the things you had said were causing pain and came up with Ankylosing Spondilytis. I posted the link so that you could see if that were a possibility.
Here is a list of symptoms
•Slow or gradual onset of back pain and stiffness over weeks or months, rather than hours or days
•Early-morning stiffness and pain, wearing off or reducing during the day with exercise
•Persistence for more than 3 months (as opposed to coming on in short attacks)
•Feeling better after exercise and worse after rest
•Weight loss, especially in the early stages
•Fatigue or tiredness
•Feeling feverish and experiencing night sweats
•Slow or gradual onset of back pain and stiffness over weeks or months, rather than hours or days
•Early-morning stiffness and pain, wearing off or reducing during the day with exercise
•Persistence for more than 3 months (as opposed to coming on in short attacks)
•Feeling better after exercise and worse after rest
•Weight loss, especially in the early stages
•Fatigue or tiredness
•Feeling feverish and experiencing night sweats
I feel you for you emmie, constant pain is so draining and the weight loss is a worry.
I would complain to the practice manager as well as the senior doctor. I would ask for an immediate response or you will take it further. That would be the local CCG (clinical Commissioning group which replaced the trusts) or NHS England. Contact details for them all can be found through the NHS site. There are local PALS (patient liaison) services which you could access, I've heard varying reports about how good they are but they could at least provide some support so you don't feel you are battling away on your own. I hope you get this sorted out soon.
I would complain to the practice manager as well as the senior doctor. I would ask for an immediate response or you will take it further. That would be the local CCG (clinical Commissioning group which replaced the trusts) or NHS England. Contact details for them all can be found through the NHS site. There are local PALS (patient liaison) services which you could access, I've heard varying reports about how good they are but they could at least provide some support so you don't feel you are battling away on your own. I hope you get this sorted out soon.
mine,
foot pain, burning sensation underneath and top
into the ankles, burning sensation into leg
neck bones very stiff, can't move left right without pain, radiates
down spine into the coccyx which feels as though am sitting on it
and the pelvis, lost weight from buttocks, legs,
excruciating pain in buttocks, like sitting on glass, needles
lower back pain radiates out to both hips, knees, burning sensation, can't think of another way to describe that.
no pain relief has helped and tried different things.
foot pain, burning sensation underneath and top
into the ankles, burning sensation into leg
neck bones very stiff, can't move left right without pain, radiates
down spine into the coccyx which feels as though am sitting on it
and the pelvis, lost weight from buttocks, legs,
excruciating pain in buttocks, like sitting on glass, needles
lower back pain radiates out to both hips, knees, burning sensation, can't think of another way to describe that.
no pain relief has helped and tried different things.
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