Have you been to a Pain Clinic?
Most areas have them. You probably will need a referral from your hospital consultant rather than your GP.
Try to figure out when your pain is worst and when it is a little less troublesome and try to organise your life around this such that you do important things when the pain is less and are able to rest when the pain is worst.
It can feel as though you are at the same level of pain all the time, so it really is worth noting down how bad things are on an hourly basis, the reviewing it at the end of each day.
It might be that you find out that some things you do consistently make things worse, others have little effect. Once you have an understanding of this, you can modify your behaviour accordingly.
Remember that there are no medals for putting up with pain, so give yourself lots of breaks for rests, don't 'go through the pain barrier' it will only exhaust you .
I do feel for you and hope something will help.