ChatterBank1 min ago
How Life Can Change Over Time
75 Answers
Regulars will know that over the last 12 months or so Mrs B. has had Health problems.
We met in late 1984 married in 1987, never looked back.
In July last year Mrs B, Kate, had a 'Blackout' was taken into A&E due to Tachycardia and a certain amount of confusion, was there for 3 days, but no diagnosis.
This happened twice more in next 2 months, during the second of those episodes she 'fitted' while waiting for the Ambulance and again in the Ambulance Bay at the Hospital.
Another 3-4 days inpatient care, this time a tentative "It could be Late Onset Epilepsy"
About 3 weeks later one evening she stood up to go to bed, then bent down to pick her blanket up off the floor, before I could stop her she bent forwards, overbalanced, banged her head on coffee table and off to A&E again for 4 days this time. There was no blanket to be picked up only in her mind.
When we visited she wanted to know why we were covered in orange spots and could we please stop those two horrible men shouting, it was an all Female Ward, no men except well behaved visitors.
During those 4 days we received some very strange 'phone calls from her saying she was at a Hotel in Norwich, or she was on a Flight to Belgium, and also some quite rational ones talking about Family, Dogs etc.
She has been Episode free since last October, which is good, however her balance is very shakey, she cannot walk very well, suffers short term memory loss, gets the shakes a lot and is dilusional at times.
Is having lots of Tests, Examinations etc.
Obviously has surrendered her Driving Licience.
I have spent the last 13 months basically looking after a Woman I no longer know, she has changed so much, does not alter what I feel for her but it is bloody hard work, we just get on with it, and do what has to be done.
I have not written this because I feel sorry for myself because I don't, I'm not that sort of person.
I guess if there's anything I want to say it is 'Just cherish what you have 'cause you never know what's around the next corner
Answers
Been out so only just picked up on this. Really sorry to hear what you have been going through, I know when you love someone you sign on for whatever comes but we all hope it won't happen. I am glad you have good support, and I hope you will have a proper diagnosis soon. It is so different when the enemy has a name and you know then if anything can be done. I knew that Dave...
18:32 Thu 30th Aug 2018
I have to admit...this had me close to tears. Partly because you, Baldric, do not usually let us see this part of your life and temperament. All I can do is wish you and Kate as much strength as is needed to get through such difficult times...I know love is there. I do hope a firm diagnosis is found. x
Getting the diagnosis will help enormously - like my daughter has made it to the Lyme's specialists in Leeds and their testing and thoroughness has been impressive - they now believe its very aggressive IBS and today its an ultra-scan, and they have lined up with cardio, lungs and dermatology in wanting to understand what's going on and how extensive it is - this is coming up to the year but slowly we are getting there! We all think that diagnosis is instant - but our examples prove just how long a process it can be and patience is needed in major dollops - and how frustrating it can all be, not least for the patient.
In my daughter's case the early good news is that, at least, IBS can be controlled/cured - unlike Lyme's...
I know the joys of caring as well, what with the big A here....however, it's give and take as she did have you to look after too not that long ago - you two have been lucky in having a friend like Tash on site..... Good luck going forward though.
In my daughter's case the early good news is that, at least, IBS can be controlled/cured - unlike Lyme's...
I know the joys of caring as well, what with the big A here....however, it's give and take as she did have you to look after too not that long ago - you two have been lucky in having a friend like Tash on site..... Good luck going forward though.
We never know what's around the corner do we Baldric or what's going to come with age? It can and often is, very scary. I have lost both my beloved parents fairly recently and Dad suffered briefly from dementia before we lost him which made him very sweet and loving. Mum, before she died kept seeing dogs in her hospital room and said they were still there when I went over to 'look at them', bless her. This was just the tip of the iceberg with my Mum and Dad, all very, very painful to me. I only have one sibling and he wasn't much help. I'm glad you have a lot of back up and people around you and I hope this helps you. Yes, cherish what we have because all too soon, it's changed, or gone. All the best to you and Kate xx
I'm so sorry to hear about your Kate. At least it seems you have help and support which is a great thing. You're so right when you said we should cherish what we have, we never know what life is going to throw at us or our loved ones. I hope that a diagnosis will soon be made and there will be some respite. I suppose they have checked for a urinary tract infection because that wouldn't be helping. Take care and accept all the support that comes your way.
So sorry to hear of what is going on in your life Baldric and the worry it is very obviously causing, you must be going through hell and poor Kate even more though it seems without understanding which is probably a blessing for her.
All I can offer you is support and understanding and one thing that may not seem apparent! Only through my experience and knowing that the medical profession as a whole do not put much store in basics like deficiencies.
Please ask what her vitamin D is in figures and look up the range, and more importantly her Vitamin B 12 which is vital to normal functioning especially neurological type. May sound silly to most but the medics really aren't understanding of the vital components of these things.
Once you get the figures even if they aren't below the range you can dismiss these being a contributory fCtor in her condition. I am only giving you the benefit of what has happened to my OH and who is worsening because medics will not help him.
I wish you and Kate well....and hope for the solution to be found and she helped ASAP. Sending gentle hugs, take care. Xx
All I can offer you is support and understanding and one thing that may not seem apparent! Only through my experience and knowing that the medical profession as a whole do not put much store in basics like deficiencies.
Please ask what her vitamin D is in figures and look up the range, and more importantly her Vitamin B 12 which is vital to normal functioning especially neurological type. May sound silly to most but the medics really aren't understanding of the vital components of these things.
Once you get the figures even if they aren't below the range you can dismiss these being a contributory fCtor in her condition. I am only giving you the benefit of what has happened to my OH and who is worsening because medics will not help him.
I wish you and Kate well....and hope for the solution to be found and she helped ASAP. Sending gentle hugs, take care. Xx
Roopower and Dunnitall,
Tash came home while I was typing last reply and offered to take Kate to a 17:00 Docs appointment, so I took the chance to take the dogs out for an hour or so. Sitting here with a cold Tinnie now.
Kate is being well treated by the Medics, levels for everything being checked and Meds being adjusted as and when, next Neuro. appointment soon and hopefully some answers.
Thank you both for the good wishes.
