Discovered Treatment For A Side Effect Of An Illness By Chance.

[joko]

Without going into details, I have been taking a new medication for one issue, and i have noticed it also seems to be having a good effect on a bad side effect of a different medical issue i also have.

There is no cure for this illness, and not much treatment available.

I may be wrong, it may just be coincidence, It's only been 6 weeks of taking them, so obviously i'd wait a while longer and see, but this side effect has been known to be basically untreatable, nothing can be done about it. its mostly annoying and can be unsightly but for some its debilitating etc.

but IF i'm correct obviously i'd like to pass this info onto relevant people so they can investigate it further, do tests etc, just in case it can help others with the condition.

Where would be best to do that? how would i do that?
The illness has groups and stuff, for support, etc but theyre not doctors or scientists etc really.
I dont want to give the name publically just in case im wrong, and people start trying to get it.
I want to give the info to people who i know will actually be interested and make use of the tip.

Is there a sort of central body that governs this kind of thing? or is it just pharmacutical companies, i havent a clue!

Thanks :)

[wolf63]

There should be a leaflet with the drugs. There should be a point of contact there to allow you to notify the manufacturers.

I would think that approaching the main charity or research people for the relevant illness. They may already know about this positive side-effect but knowing about it and proving that it exists are different things.

Good Luck

[waterboatman]

Also inform your GP.

[soxmis_sid]

Maybe contact a medical journal such as The Lancet?

[Mamyalynne]

Although this scheme is mainly for reporting adverse side effects, it may well be worth going via this route.

There is also a 'Contact' section.

https://yellowcard.mhra.gov.uk/

[237SJ]

I would contact the company that made the drug (Glaxo, Pfizer or whoever it was)

[rowanwitch]

I would go along the route suggested by mamyalynne, but also the largest group for the condition. They may be the ones in a position to support a clinical trial if they can find enough evidence.