The Most Interesting Thing I’ve Done Today

[Vagus]

Is complete yet another questionnaire and have a face to face with the doctor for the company I did the clinical trial with...and was told I'll receive another £150 for my trouble!!!! Could have knocked me down with a feather 🤩

[barry1010]

Yippee! 

[bookbinder]

Don't forget who your friends are!

[barry1010]

I fell in to a YouTube rabbit hole and found an American who had no idea Britain was in WWII before the US, that Britain was bombed nor that there was rationing.

[Vagus]

Sorry bookbinder, it'll go towards the new specs I pick up from Asda optician tomorrow...not sure I need six pairs though 🫣

[Canary42]

///an American who had no idea Britain was in WWII before the US, that Britain was bombed nor that there was rationing.///

Was his name Donald ?

[gulliver1]

Canary 17.11 "Was his name Donald"....  No.. Boris.

[webbo3]

I do loads of clinical trials, good money.

[Khandro]

I didn't get quite right & lost marks, just 5 mins ago;

Pater quoque et mater in urbe sunt

(Father and also mother are in the city)

It's yer actual Latin !

[Vagus]

This is the first one I've done webbo, £300 in all but to be honest I wasn't aware I'd be getting anything until right at the beginning and had an interview for the trial to see if I was eligible. Was even more surprised tooday to receive yet more £££.

Theres another trial I've been invited to about smokers changing to vaping which will pay £1000, I don't smoke or vape so don't fit the criteria.

[choux]

Hello, Vagus, hope you are well. Interesting to read about your windfall - go you! Well done on the feet, too.

Today I managed to get my Consultant Oncologist to do a volte face. A week ago I was summarily thrown off my chemotherapy, without a real explanation and to say I was non-plussed, let alone annoyed, would be a huge understatement. However, by plugging away all week with emails and phone calls to other hospitals I had a long consultation with the Oncologist today. I also got an apology!

The reason chemo was stopped was that following a bit of a hiatus with my health it was decided that the anti-cancer drug I was on, Capecitabine, could have had fatal consequences. Apparently there have been many deaths and oncologists don't like attending coroners' courts to explain their decisions! Considering the same hospital has dealt with all of my heart investigations and operations I am amazed they gave me the drug in the first place.

Unfortunately the cessation of chemo also meant I was rejected from the very special study I had volunteered for at another hospital some 30 miles away. But again the change of decision today means that I can go ahead with it, albeit on a less effective drug than the one I have had. I will settle for that. I am the only patient they have tested who meets the requirements of the trial whose tests, so far, have confirmed that I have circulating tumors in my DNA.

My trial reimburses me for petrol and the car parks' ANPR system means I don't have to pay. That is good of them and I would have gone ahead with it irrespectively - I just wanted the chance to give something back into the system.

Life, as I have come to know it over many months, now returns to normal. xx

[Vagus]

Well choux, I'm changing my 'most interesting thing' to seeing you on here...😁😁😁🥳

Goodness, you don't do things by half do you? Circulating trumours, free parking and petrol...what more do you want????  Normal??????? Jeepers, I'm surprised you can remember normal, my lovely 😊

serious question..how are you feeling both physically and mentally? Are you eating ok, sleeping ok, getting through each day ok?

I send you lots of love and support..and yet more broccoli 🥦 although I'll let you off eating it if you don't feel up to it 😊 xxxx

[choux]

Bless you, Vagus, you have made me laugh out loud. May I tell you what you can do with your 🥦 ?  😘

It is unbelievable what one can become "used to". Normal = the last 6 months or so. Sleep is still evasive, appetite is poor, BP is all over the place. Physically a bit wrecked really and mentally - well, I haven't felt so angry in a long while. I didn't dare trust myself to make phone calls so drafted emails and then toned them down quite a bit, lol. Other than that it is back to my normal happy, go lucky self. Yeah, right 😉 xx