The boy whos skin fell off

[buttons]

Did any one watch the documentary on channel four last week called the boy whos skin fell off? I found it seriously heartbreaking and spent most of the hour in tears. I am having a bit of a memory block as to what the name of the charity foundation was that was set up to help people with this rare genetic disorder. It was a girls name, and their symbol was butterflies, Melinda Messenger helped to promote the charity. I want to donate something to them, but need the charity name to do this. Can any one help??

[Tat]

it was called DEBRA. if you google it i'm sure you'll find something.

[jenstar]

http://www.debra.org.uk - I got the URL from the Channel 4 website, which has a section on the programme: http://www.channel4.com/health/microsites/B/boy_wh
ose_skin_fell_off/index.html

[thewillow]

It was Nell McAndrew not Melinda Messenger. I can see how the two could be mixed up!

[brawburd]

buttons, I'm not one for crying at the telly but that really got to me as well. What a horrendous life. And I really felt it for his mum as well.

[Natie]

yea it as DEBRA i know it was very heartbreaking and upsetting