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The boy whos skin fell off
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Did any one watch the documentary on channel four last week called the boy whos skin fell off? I found it seriously heartbreaking and spent most of the hour in tears. I am having a bit of a memory block as to what the name of the charity foundation was that was set up to help people with this rare genetic disorder. It was a girls name, and their symbol was butterflies, Melinda Messenger helped to promote the charity. I want to donate something to them, but need the charity name to do this. Can any one help??
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- I got the URL from the Channel 4 website, which has a section on the programme: http://www.channel4.com/health/microsites/B/boy_wh
ose_skin_fell_off/index.html
ose_skin_fell_off/index.html
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