Anyone Knowledgable About Heds And Skin In Particular?

[joko]

I have suspected hEDS. The hypermpobility part is confirmed, but the EDS part is not yet formally diagnosed - but its fairly certain, waiting for referrals etc.

If its confirmed, i fortunately seem to have a fairly mild level of it.

I have had minor burn injury to my skin - and as hEDS is a collagen fault - i am wondering if its wise to provide my body with more collagen to assist healing?
or not - because i dont want to risk ending up with too much and end up with keloids!

as i dont know if my problem is a deficiency of collagen or that i make faulty collagen, adding more could just being giving me more collagen to make faulty!?

i have collagen tablets and collagen solution, which i have been using for part of a month, but now im worrying about 'overloading' the healing process and ending up with bumps. :/

any thoughts? anyone with EDS have any experience with this kind of thing?

thanks :)

[Mamyalynne]

I have no knowledge but I think it may be worth you joining the EDS Support Group as once you know the type you are dealing with you can get some decent advice.

https://www.ehlers-danlos.org/what-is-eds/information-on-eds/types-of-eds/

[Buenchico]

The relevant charity might be the best place to seek advice from:
https://www.ehlers-danlos.org/support/

[Buenchico]

Oops!

I should have refreshed the page before posting!

[Buenchico]

From the same site but possibly relevant:
https://www.ehlers-danlos.org/information/the-skin-in-hypermobile-ehlers-danlos-syndrome/

[NellieMay]

I have Hypermobility and more than likely EDS. Our collagen is faulty Colleges and supplements will not help at all. it doesnt improve fsukty collagen. We dont need extra collagen and we cant improve the collagen we have. I have joined EDS org (as in Mamyas link) It's free and they have a help line to phone for any problems. There is also an excellent FB site for EDS uk.