Question Author
thanks all
i havent officially been diagnosed, but ive had an 'unofficial confirmation' from a musculoskeletal specialist, he believes i do have it, but that wasnt the reason i was seeing him, & i was already on the waiting lists to see a rheum.
im still waiting for my appt for the rheum
ive had hypermobility all my life, so i think its hEDS.
i think he only mentioned it because i'd mentioned that i was under investigations for EDS, with confirmed HM, & he noticed the stretchiness.
he hasnt said its a problem or anything, i got the impression he was just telling me, rather than it being a formal diagnosis etc.
he didnt note it on my diagnosis printout, it was more casually mentioned.
ive suspected i have EDS for a long time, many many years, so ive joined lots of groups etc
thanks for all the info and links, i'll take a look.