Hemochromatosis - Iron Tablets - One For Sqad Maybe?

[joko]

Ive just been told i have a liver problem but they're not sure what it is yet, its pretty mild whatever it is, but 1 thing they mentioned was Hemochromatosis.

they took lots of blood and said id hear in 3 weeks or so - however, i am on prescription iron tablets, 3 a day, ferrous fumerate

should i stop taking them? for now at least?
i didnt think to ask at the time & it was another doctor i'd never met before & cant even remember his name now, so its not like i can just ask him.

Thanks :)

(info - i was in hosp recently with a duodenal stenosis & blocked stomach, and had some malnutrition.
i also was anaemic & given an iron infusion, & also given 3 blood transfusions because of low HB)

[Buenchico]

While you're waiting for Sqad (although he never seems to sleep!) . .

Quote:
"You do not need to make any big changes to your diet to control your iron levels if you're having treatment, but you'll usually be advised to avoid:
* breakfast cereals containing added iron
* iron or vitamin C supplements
* drinking too much alcohol"

Source:
https://www.nhs.uk/conditions/haemochromatosis

[Sqad]

Haemochromotosis is too much iron in the body.

////(info - i was in hosp recently with a duodenal stenosis & blocked stomach, and had some malnutrition.
i also was anaemic & given an iron infusion, & also given 3 blood transfusions because of low HB)///

Joko......the above information gives the game away in that you had an iron deficiency anaemia, too little iron which makes a diagnosis of Haemochromotosis extremely unlikely.

Continue with your iron medication until your next medical appointment.

[joko]

thanks all

i thought that too sqad but the doc said its probably the anaemia that has stopped the iron building up & going into overload in my liver, as its a build up, because for some reason iron is not dispelled as normal & stays in the liver getting more and more built up with iron over time (something like that)
so i presumably i can have an overload & anaemia at the same time.
he had all my notes etc so he would have known about the anaemia etc
i read the main treatment for it is bloodletting!

but other than the iron tablets i have no major source of iron in my diet as i havent eaten meat or fish in 30 years.

they noted while i was in the hospital that the liver anomaly that was showing up could have been due to the intravenous food i was having - i had about 7 bags i think & its known to cause liver problems, & thought i may go away once i stop that.

there is a chance these tests today will be all back to normal (fingers crossed)
the scans etc were all fine too & theyve seemed unsure of the issue the whole time.
its now about 2 months out of hosp

he mentioned contacting my gp, maybe he can double check

thanks

[Sqad]

Thanks for the full and helpful reply.
One can be anaemic yet the liver is packed with iron and that is because a low red cell count is causing the anaemia but the cells of the body are packed with iron, but that can be seen in a blood test.

Wait for the liver tests to come light and I would be interested in making a comment.

I am not enamoured with a diagnosis of Haemochromatosis on the facts so far.

[joko]

ok i'll post results, he said about 3 weeks - they took 8 vials

[Sqad]

Joko....if the results will take 3 weeks to surface, then i would start a new thread, as by then this will be lost in the maze of threads.