m.e

[emstown]

Hi, about a month and a bit ago i was diagnosed with M.E.
I have had a 3 week course of twice weekly B12 injections and have to have them two monthly now. they seemed to make a tiny bit of difference, but not that much. im just wondering if its worth it?
aswell has anyone got any helpful tips to keep going, after a few weeks of school im excausted and become ill, im worried it may affect my work and grades and i really dont want that happening as i am a good student.
thanks x

[beryllium]

Hi emstown,
Have you joined an m.e association? as they do support groups and those are always helpful.

http://www.meassociation.org.uk/

B.

[emstown]

yeah im just joining to AYME, it says alot about it. but nothing to help. i really dont know what to do.

[dopeybint]

Hi ems, where in the country are you from ? I've had ME for about 15 years, and would like to help / advise you on how to best deal with it x x

[beryllium]

That is the whole point of support groups and meetings. You meet the same people. Possibly the same age. All with the same diagnosis. You'll all be different, but tips are always useful from real people.

[emstown]

um im from the west midlands. how did you get your M.E?
mine came on after chronic glandular fever. i seem not to be having too much luck with my health. any tips?
thanks

[peppy]

Ems, my e-mail address is [email protected]. Will get some info 2 u cos it's a horrid condition darling, my heart goes out to you. Send me your address will ya and we can get cracking and get you back on the road to recovery.
x x x x

[emstown]

Yeah ive emailed you thanksx

[Ice-Maiden]

Can you give any advice dopeybint, as a friend of mine suffers horribly with ME? Thanks.

[emstown]

thanks ice maiden, i was just about to say that

[peppy]

Am gonna get on the case tomorrow Ems and Ice, passionate about this subject cos blummin suffered with it for too long. Have come out the other end though, talk to ya both tomorrow, have a nice sleep won't ya darlings x x x

[beryllium]

Out of interest. I take a drug called Modafinil. I was originally taking Amatadine but they weren't strong enough.

Would those work for your m.e fatigue?

B. xxx

[nutgoneflake]

Here's something for everyone on here who's suffering with ME. Have a look at "Mickel Therapy" - you'll find it online, and the therapists can help you over the phone if you can't get to them. It's a drug-free treatment that has helped a lot of people, including a good friend of mine who has since trained as a therapist. I won't tell you her name, because you may think I'm just pushing work her way, but what I WILL say, is that she had chronic ME for a very long time. At one point, she stayed in bed for nearly two years, and friends went round to feed her and wash her hair. Since discovering this therapy, she is living A NORMAL LIFE again, which is completely amazing. Please look into it, and GOOD LUCK! xx