Behcets disease

[tamirra]

Morning, can anyone possibly answer my question, why has my daughters immune system been knocked out with Cyclosporin for her Behcets and not boosted? x

[bednobs]

well, i think you are all very rude - you say "how will anyone on here know" but i have answered the question (and i'm sure squad could have done had he wanted to) so clearly people DO know.
TBH taking up an appointment to ask the above question seems silly when you can perhaps have it explained in easier terms by someone on here. I don't have a vast knowledge of behcets disease but do understand why people are prescribed immunosuppresants for for auto immune diseases.
people are allowed to ask any questions they want, and it's up to other people if they answer them or not

[tamirra]

Thank you bednobs i do appreciate your understanding of my worry with my daughter, when she is so ill, and not all Dr`s understand not even the top ones, thats why i was hoping someone would be able to maybe help or know of someone suffering the same illness. Thank you

[Mamyalynne]

Tamirra, I have no knowledge whatsoever about Bechets, but this is quite a comprehensive page albeit American outlining some of the treatments and how they work.

http://www.behcets.co...=bhJIJSOCJrH&b=260550

[tamirra]

Thank you mamyalynne its very interesting. xx

[anneasquith]

mamy, a good piece for tamirra to read, bednobs, i dont believe i was rude to tamirra the morning .

[tamirra]

Yes it is a good site i have joined the chat room, also i did not realise how many people actually die of the disease. No Anne you were not rude to me at all. xx

[filmlady]

Hi Tamirra,
I've had Behcet's for 30+ years and have written a couple of BD-related books for patients. The Behcet's Syndrome Society in the U.K. may be able to help you. Their site is http://www.behcets.org.uk. You can also watch the Discovery Health "Mystery Diagnosis" show about my 17-year search for a diagnosis (and see other BD links) here: http://www.bdshowonline.com
All the best,
Joanne Zeis

[filmlady]

Ooops, my link for the Behcet's Syndrome Society had a period at the end by mistake. Try this: http://www.behcets.org.uk

Joanne

[tamirra]

Thank you so much flmlady for the links i have watched the videos which were very interesting. Thank you again. xx