That's a bit of a puzzle then queenie, just as well you're seeing someone tomorrow.
I must admit, as a mum, it was always the hypo signs I worried about him losing as he had two severe early morning seizure type hypos, requiring glucagon injections, just before he went off to Uni. Seems they were related to growth hormone levels dropping.
He talks about having a gluey mouth when his levels are too high but that's about it. I didn't ever notice the ketone odour on him. He's lived away from home for ten years now so I'm probably a bit out of touch with it all to be honest.
It'll be interesting to see what the DAFNE team have to say. Hope your eyes are feeling much better today xx