Update On Cteph

[nelliebee]

Went to Papworth yesterday, saw the Surgeon that would have done the operation had I have been able to have it. He fully explained the reasons to me as to why I am not suitable for Surgery, too many risks associated with other problems. I have accepted the explanation now, and will be going on to the Riociquat drug ( as previously mentioned) just working with Papworth as to how I will get it (not available from local chemists as not on the N.H.S at the moment) and probably most important to the Pharmacutical Company , my method of payment!! Tunnel not quite so long now maybe some light shortly. If you are really interested in watching operations,the one I have described is on B.B.C 2 on Wed at 9pm. I can watch now, knowing it won't happen to me ! Thank you all for your interest and hoope you are happy with my update.

[nelliebee]

^ or even "hope" can't spell either.

[Sqad]

Thanks nellie...........will not watch the TV operation....can't stand the site of blood.........;-)

[Sqad]

and the sight.

[slaney]

Thanks for the update nelliebee, very interesting.
The drug was only launched in the UK in March of this year.
I've had a quick scan of a trial published in the New England Journal of Medicine last year, and it looks promising.
Best of luck with it.

[janbee]

Thanks for the update Nellie. I wish you excellent results with the drugs. Let us know. Keep us up to date.
Jan xx

[chrissa1]

Good luck, nelliebee.

[murraymints]

Nellie ..hope things improve for you very soon xx

[marval]

Thank you for the update Nellie, I hope you have good results with the drug.

[nelliebee]

Thank you all for your interest and good wishes x