Couple Forced To Sell Home After Nhs Refuse To Fund Daughter's Treatment For Rare Illness.

[anotheoldgit]

http://www.express.co.uk/news/uk/576462/Brighton-home-sell-sick-child

Perhaps if she was a non UK citizen and suffering from a self inflicted illness, there would be no problem?

[ummmm]

You're not comparing illnesses.

[hc4361]

Why do you have to bring nationality and race into everything?

Every person suffering from this dreadful disease is refused that particular treatment, regardless of who they are.

[Mamyalynne]

If you think NICE works that way, I think you are wrong.

This is a tragic situation for this family.

[ummmm]

But why compare an illness with a completely different illness (what ever a self inflicted illness is?)

[Retrochic]

They have a house worth £435K. They need to raise £30K why can't they just get a loan?

[mikey4444]

Playing the race/immigration card again I see AOG !

[hc4361]

The simple fact is that people with this condition usually have a normal life span. It is not life threatening although it is nasty and difficult to live with.

At £30k a year it is a very expensive drug that is prescribed on the NHS for people with life threatening cancer, that will no longer need the drug after a relatively short time either because their cancer is in remission or the cancer has killed them.

This drug will not cure this little girl, it will alleviate the symptoms only.

[hc4361]

Retrochic, it's not just £30k. It is £30k a year for the rest of her life, although the likelihood is that it will be much cheaper at some point in the future.

[whiskeryron]

The 30K they need would presumably pay for the required treatment at a non NHS Hospital. Like many other unfortunate patients who have been led to believe that the NHS is there to treat all UK citizens free at the point of delivery, they & we have been & are being fobbed off with these statements which to me are quite scandalous. As we are constantly being told by successive governments '' The NHS is safe in our hands''. What prt of the NHS are they talking about ?

[hc4361]

This isn't for hospital treatment, it is simply a prescription for the drug. It is a tablet taken once a day with water.

As far as I know there has always been cases where treatment has been refused due to cost versus benefit. This drug is routinely prescribed to save lives.

[Fusion5]

Poor kid. Perhaps if we stopped giving free treatment to overseas freeloaders who have paid nothing into the NHS, the purse may be a little fuller. Sadly this Will never happen.

[mikey4444]

Another attempt at playing the race/immigration card !

[hc4361]

The side effects of this drug can be horrendous, even life threatening. It can cause infertility which is a hard decision to make on behalf of a young girl who will not die from her disease.

[whiskeryron]

//
hc4361
This isn't for hospital treatment, it is simply a prescription for the drug. It is a tablet taken once a day with water.

As far as I know there has always been cases where treatment has been refused due to cost versus benefit. This drug is routinely prescribed to save lives. // OK the news headline states '' The NHS refuse to fund treatment'' so is not the NHS there to save lives or to repeat my question '' is the NHS there for some UK patients but not others when the going gets tough ?

[hc4361]

You say 'save lives'. This illness is not life threatening and the drug will not save her life.

Those with cancer who will die without this drug get it on the NHS.

[Fusion5]

If that is aimed at me Mikey and you think I am racist then so be it. I am more a realist than racist to be perfectly honest, but if YOU want to play the racist/immigrant card, then go ahead.

[ummmm]

I think it's aimed at the OP.

[Mamyalynne]

Quite recently there was an excellent Documentary on C4 - it illustrated how these decisions were taken every day and set out the cost of treating one person that same amount could keep alive 10 (rough example).

It became very clear to me how incredibly difficult it is to decide when after all we are talking about quality of life or even life or death itself.

Worth seeking the programme out.

http://www.channel4.com/programmes/nhs-2-billion-a-week-counting

[Fusion5]

No that was aimed at me ummmm. Mikey has already accused AOG further up the page lol lol

[ummmm]

Oh...