I would be the best parent I could be for him. That would be to hold him in my arms and sing him a lullaby while he slipped away.
My son was born with a heart condition that the surgeon said, was not compatible with life UNLESS he had OHS. We were prepared for the worst and accepted, that if it didn't go well his life would have been in a vegetative state.
We made the decision then before we signed the consent forms that if that were the case we would let him slip away. Luckily it went well.
This little boy has such a minute chance of success and that success would not bring much relief from his present state that I feel the parents are being cruel and inhuman.
To everyone who thinks he should be kept alive. Look at him and forget for a monent he looks like any cute and cuddly baby but look at how he is, look at what he can do, understand, communicate, what he can feel physically without medication, what he THINKS and imagine what he FEELS emotionally with all the above.
Now, do YOU want to be in that state? Right now, right were you are?